Navigating Topical Steroid Withdrawal Syndrome (TSWS): Finding Balance and Natural Support

Steroids are powerful medications used to treat various inflammatory and autoimmune conditions. While they offer relief from symptoms, long-term use can lead to a challenging condition known as Topical Steroid Withdrawal Syndrome (TSWS). It occurs when the body, accustomed to the presence of steroids, struggles to produce adequate cortisol after discontinuation, resulting in a range of withdrawal symptoms. In this blog post, we will explore the complexities of TSWS and discuss natural ways to support the body during this challenging period.

Understanding Steroid Withdrawal Syndrome

TSWS is a real and often underestimated phenomenon, requiring patience, understanding, and comprehensive support. It can manifest differently in individuals. Skin symptoms can include severe skin inflammation, ‘zingers’ (zinging nerve pain), redness, crusting, severe oozing, flaking, and deep bone-wrenching itch. Fatigue can be crushing, due to sleep disturbances from the itch and pain. Rebound symptoms from steroid withdrawal can result in extreme anxiety, insomnia, social anxiety and depression. Muscle weakness, joint pain & gastrointestinal issues can also feature. The severity and duration of these symptoms vary based on the duration and dosage of steroid use.

Natural Support for TSWS

1. Balanced Nutrition: A well-balanced diet rich in vitamins, minerals, and antioxidants is essential. Incorporate whole foods, a rainbow of colours with fruits & vegetables: whole grains, and lean proteins, to support your immune system and overall health. The diet needs to be as varied and inclusive as possible. The bowels need to be eliminating regularly.
2. Regular Exercise: Engaging in gentle exercises like walking, yoga, or swimming (care with chlorinated pools) can boost your mood, improve muscle strength, and promote better sleep. Consult a healthcare professional to determine the most suitable exercise routine for your condition.
3. Stress Management: Chronic stress can exacerbate TSWS symptoms. Explore stress-reduction techniques such as meditation, deep breathing, or mindfulness to promote relaxation and overall well-being.
4. Quality Sleep: Aim for 7-9 hours of restorative sleep each night. Create a calming bedtime routine, maintain a comfortable sleep environment, and limit screen time before bed to improve the quality of your sleep.
5. Herbal and Natural Supplements: It’s imperative to address the adrenal glands, which need to take over making cortisol again and the liver, which clears toxins. Herbs, like ashwagandha (Withania) and holy basil, have adaptogenic properties that can help the body cope with stress and support adrenal function. A qualified Naturopath or herbalist can give specialised advice including individualised or practitioner only options. Some amino acids like Histidine (interestingly a precursor of histamine) can give speedy relief.
6. Acupuncture and Massage Therapy: These alternative therapies can provide relief from pain, improve energy flow, and promote relaxation. Many people find them beneficial in managing TSWS symptoms.
7. Skin care: There is a risk of staph infections if the skin is broken, so careful hygiene, and products without added chemicals and fragrances are key. You may consider seeing a skin specialist for some prescribed products for facial care, but products like Moo Goo or a natural base cream with added probiotics may be helpful. I’m not in agreeance with some theories of using moisture-free products.
8. Community and Support: Connecting with others who have experienced or are experiencing TSWS can provide emotional support, practical advice, and a sense of belonging. Online forums, support groups, or counselling/psychology sessions can be invaluable during this challenging time.

Conclusion

Topical Steroid Withdrawal Syndrome can be a daunting experience, but with the right support and a holistic approach, managing its symptoms and promoting overall well-being is possible. Embracing a healthy lifestyle, seeking natural support, and staying connected with a supportive community can make a significant difference in your journey toward recovery. Consult with your healthcare provider before making any significant changes to your lifestyle or taking supplements to ensure your safety and well-being.